So since I last checked in a fair bit has happened. Graeme ( my husband ) a.k.a Pablo 201 has completed a 36 hour round trip to Frankfurt to meet with a consultant, purchase the trial drug ( ONC201) & sucessfully bring it home to mama.
I've been visited daily by the community nurse & have finally had my syringe driver removed & moving onto oral anti sickness drugs so far so good.
I took the first dose of the trial drug earlier this week - All eggs - All in.
The trial drug is unavailable in the UK & is very expensive so i'd like to thank all fundraisers, past, present & future for enabling me to have this option , to have some hope.
Other than that I feel pretty good, cant complain considering. I'm feeling hopeful . I walked the dog today & went to the shops. progress.
Thanks for stopping by.